Amyotrofick\u00e1 later\u00e1ln\u00ed skler\u00f3za (ALS) je progresivn\u00ed neurologick\u00e9 onemocn\u011bn\u00ed, kter\u00e9 postihuje motorick\u00e9 neurony v mozku a m\u00ed\u0161e. Jak nemoc postupuje, m\u016f\u017ee v\u00e9st k pot\u00ed\u017e\u00edm s pohybem, \u0159e\u010d\u00ed a polyk\u00e1n\u00edm.<\/p>\n\n
Dona Moira, farm\u00e1\u0159e a otce z venkova v Kanad\u011b, postihla ALS v roce 1999. \u010cty\u0159i roky po diagn\u00f3ze dostal ventil\u00e1tor a ztratil schopnost mluvit. Tato zni\u010duj\u00edc\u00ed ztr\u00e1ta mu znemo\u017enila komunikovat se sv\u00fdmi bl\u00edzk\u00fdmi tak, jak to kdysi d\u011blal.<\/p>\n\n
Jednoho dne, kdy\u017e \u0159\u00eddila, sly\u0161ela Donova man\u017eelka Lorraine v r\u00e1diu rozhovor s Mickem Ebelingem, zakladatelem Not Impossible Labs. Ebeling mluvil o Eyewriteru, za\u0159\u00edzen\u00ed, kter\u00e9 umo\u017e\u0148uje lidem, kte\u0159\u00ed se nemohou h\u00fdbat, vytv\u00e1\u0159et um\u011bn\u00ed pouze pomoc\u00ed sv\u00fdch o\u010d\u00ed. Lorraine byla inspirovan\u00e1 a obr\u00e1tila se na t\u00fdm Not Impossible Labs s nad\u011bj\u00ed, \u017ee by mohli jej\u00edmu man\u017eelovi pomoci znovu z\u00edskat hlas.<\/p>\n\n
Not Impossible Labs je startup, kter\u00fd vyu\u017e\u00edv\u00e1 technologie ke zlep\u0161en\u00ed \u017eivota lid\u00ed se zdravotn\u00edm posti\u017een\u00edm. Javed Gangjee, in\u017een\u00fdr a dobrovoln\u00edk, za\u010dal s Donem spolupracovat na v\u00fdvoji po\u010d\u00edta\u010dov\u00e9 verze tabulky s p\u00edsmeny, kterou pou\u017e\u00edval ke komunikaci.<\/p>\n\n
S nov\u00fdm programem mohl Don ps\u00e1t zpr\u00e1vy nav\u00e1z\u00e1n\u00edm o\u010dn\u00edho kontaktu s ka\u017ed\u00fdm p\u00edsmenem. Po\u010d\u00edta\u010d pak slova vyslovil, co\u017e mu umo\u017enilo komunikovat samostatn\u011bji.<\/p>\n\n
Poprv\u00e9 po v\u00edce ne\u017e deseti letech byl Don schopen vyj\u00e1d\u0159it l\u00e1sku a vd\u011b\u010dnost sv\u00e9 \u017een\u011b. “Miluji t\u011b, Lorraine,” \u0159ekl a jeho slova se rozl\u00e9hala po m\u00edstnosti. “Nedovedu si p\u0159edstavit \u017eivot bez tebe. Posledn\u00edch 25 let jsi mi zp\u0159\u00edjemnila a posledn\u00edch 20 let s ALS snesiteln\u011bj\u0161\u00edch.”<\/p>\n\n
Don\u016fv p\u0159\u00edb\u011bh sv\u011bd\u010d\u00ed o s\u00edle komunikace. P\u0159es sv\u00e9 fyzick\u00e9 limity dok\u00e1zal p\u0159ekonat bari\u00e9ry ALS a znovu se spojit se sv\u00fdmi bl\u00edzk\u00fdmi.<\/p>\n\n
Technologie vyvinut\u00e1 spole\u010dnost\u00ed Not Impossible Labs nejen\u017ee dala Donovi hlas, ale dala mu tak\u00e9 nov\u00fd smysl \u017eivota. Nyn\u00ed se m\u016f\u017ee \u00fa\u010dastnit rozhovor\u016f, sd\u00edlet sv\u00e9 my\u0161lenky a pocity a vyjad\u0159ovat l\u00e1sku a podporu sv\u00e9 rodin\u011b a p\u0159\u00e1tel\u016fm.<\/p>\n\n
Inovace, kter\u00e1 stoj\u00ed za za\u0159\u00edzen\u00edm, kter\u00e9 vr\u00e1tilo Donovi hlas, je z\u00e1\u0159n\u00fdm p\u0159\u00edkladem toho, jak lze technologie vyu\u017e\u00edt ke zlep\u0161en\u00ed \u017eivota lid\u00ed se zdravotn\u00edm posti\u017een\u00edm. Not Impossible Labs stoj\u00ed v \u010dele tohoto hnut\u00ed a vytv\u00e1\u0159\u00ed n\u00e1stroje, kter\u00e9 umo\u017e\u0148uj\u00ed jednotlivc\u016fm \u017e\u00edt plnohodnotn\u011bj\u0161\u00ed a nez\u00e1vislej\u0161\u00ed \u017eivoty.<\/p>\n\n
Don\u016fv p\u0159\u00edb\u011bh je p\u0159ipom\u00ednkou toho, \u017ee i tv\u00e1\u0159\u00ed v tv\u00e1\u0159 nep\u0159\u00edzni osudu existuje nad\u011bje. D\u00edky s\u00edle l\u00e1sky, inovac\u00ed a odhodl\u00e1n\u00ed m\u016f\u017eeme p\u0159ekon\u00e1vat v\u00fdzvy a \u017e\u00edt sv\u016fj \u017eivot naplno.<\/p>","protected":false},"excerpt":{"rendered":"
Mu\u017e s ALS znovu z\u00edskal sv\u016fj hlas: P\u0159\u00edb\u011bh l\u00e1sky a inovac\u00ed ALS a komunika\u010dn\u00ed v\u00fdzvy Amyotrofick\u00e1 later\u00e1ln\u00ed skler\u00f3za (ALS) je progresivn\u00ed neurologick\u00e9 onemocn\u011bn\u00ed, kter\u00e9 postihuje motorick\u00e9 neurony v mozku a…<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[507],"tags":[19474,37,502,4335,497,6285],"class_list":["post-14507","post","type-post","status-publish","format-standard","hentry","category-medical-technology","tag-als","tag-innovation","tag-communication","tag-love","tag-technology","tag-disability"],"_links":{"self":[{"href":"https:\/\/www.lifescienceart.com\/cs\/wp-json\/wp\/v2\/posts\/14507","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lifescienceart.com\/cs\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lifescienceart.com\/cs\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lifescienceart.com\/cs\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lifescienceart.com\/cs\/wp-json\/wp\/v2\/comments?post=14507"}],"version-history":[{"count":1,"href":"https:\/\/www.lifescienceart.com\/cs\/wp-json\/wp\/v2\/posts\/14507\/revisions"}],"predecessor-version":[{"id":14508,"href":"https:\/\/www.lifescienceart.com\/cs\/wp-json\/wp\/v2\/posts\/14507\/revisions\/14508"}],"wp:attachment":[{"href":"https:\/\/www.lifescienceart.com\/cs\/wp-json\/wp\/v2\/media?parent=14507"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lifescienceart.com\/cs\/wp-json\/wp\/v2\/categories?post=14507"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lifescienceart.com\/cs\/wp-json\/wp\/v2\/tags?post=14507"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}